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EURO-NMD: European Reference Network for Rare Neuromuscular Diseases

EURO-NMD: European Reference Network for Rare Neuromuscular Diseases

Coordinator of expert centre network

Członkowie

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Antwerp University Hospital of Antwerp - UZA

NeuroMuscular Reference Center (NMRC) (adults section) - UZ Antwerpen University Hospital of Antwerp - UZA

NeuroMuscular Reference Center (NMRC) (children section) - UZ Antwerpen University Hospital of Antwerp - UZA

Multidisciplinary expert team/Centre for rare diseases Saint-Luc University Hospital Cliniques universitaires Saint-Luc - UCLouvain

NeuroMuscular Reference Center (NMRC) - UCL Saint-Luc Cliniques universitaires Saint-Luc - UCLouvain

Multidisciplinary expert team/Centre for rare diseases Erasme University Hospital Erasme Hospital - ULB

NeuroMuscular Reference Center (NMRC) - ULB Erasme-HUDERF Erasme Hospital - ULB

General Genetic Counselling Clinic - UZ Gent Center for Medical Genetics Gent

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Ghent Ghent University Hospital - UZ Gent

NeuroMuscular Reference Center (NMRC) (adults section) - UZ Gent Ghent University Hospital - UZ Gent

NeuroMuscular Reference Center (NMRC) (children section) - UZ Gent Ghent University Hospital - UZ Gent

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Leuven UZ Leuven - Campus Gasthuisberg

NeuroMuscular Reference Center (NMRC) (adults section) - UZ Leuven UZ Leuven - Campus Gasthuisberg

NeuroMuscular Reference Center (NMRC) (children section) - UZ Leuven UZ Leuven - Campus Gasthuisberg

Tampere Neuromuscular Center TAYS - Tampere University Hospital

Reference centre for neuromuscular diseases Nord/Est/Ile-de-France - Constitutive site (children) CHU Paris IdF Ouest - Hôpital Raymond Poincaré

Reference centre for familial amyloid neuropathy and other rare peripheral neuropathies - Coordinator site CHU Paris-Sud - Hôpital de Bicêtre

Reference centre for amyotrophic lateral sclerosis and other rare diseases of the motor neuron - Coordinator site CHU de Limoges - Hôpital Dupuytren

Reference centre for neuromuscular diseases PACA-Réunion-Rhône Alpes - Coordinator site (adult) CHU de Marseille - Hôpital de la Timone

Reference centre for neuromuscular diseases Atlantique Occitanie Caraïbe - Constitutive site CHU de Nantes - Hôtel Dieu

Reference centre for neuromuscular diseases PACA-Réunion-Rhône Alpes - Constitutive site CHU de Nice - Hôpital Pasteur

Reference centre for neuromuscular diseases Nord/Est/Ile-de-France - Coordinator site Institut de Myologie - Hôpital Pitié-Salpêtrière

Reference centre for neuromuscular diseases PACA-Réunion-Rhône Alpes - Constitutive site CHU de Saint-Etienne - Hôpital Nord

Central nervous system malformations and microcephaly clinic Charité - Universitätsmedizin Berlin (CVK)

Neural tube defect clinic Charité - Universitätsmedizin Berlin (CVK)

Rare neurologic movement disorders, muscular diseases and epilepsy clinic Universitätsklinikum Bonn (AöR)

Myasthenia clinic Universitätsklinikum Essen

Neuromuscular diseases clinic Universitätsklinikum Essen

Rare neurologic and neuromuscular diseases clinic Universitätsklinikum Freiburg

Neuromuscular diseases clinic Universitätsmedizin Göttingen

Neuromuscular diseases clinic Friedrich-Baur-Institut

Neuromuscular diseases clinic Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Amyotrophic lateral sclerosis clinic Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

Motor neuron diseases clinic Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

Outpatient Clinic of Rare Disorders Institute of Genomic Medicine and Rare Disorders, Semmelweis University

National Rare Disease Research Coordination Centre - Genetic counselling clinic Clinical Center - University of Pécs

Centre of expertise for neuromuscular diseases ASST Spedali Civili di Brescia

Centre of Expertise for neuromuscular diseases A.O.U. Sant'Anna - Polo Chimico-Bio-Medico

Genetic counselling A.O.U. Sant'Anna - Polo Chimico-Bio-Medico

Centre of Expertise for neuromuscular and neurodegenerative diseases A.O.U. Policlinico "G. Martino"

Centre of Expertise for neuromuscular diseases Centro Clinico Nemo

Centre of Expertise for neuromuscular diseases Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

Centre of Expertise for primary and amyotrophic lateral sclerosis IRCCS Istituto Auxologico Italiano - Ospedale San Luca

Centre of Expertise for genetic skeletal muscle diseases AOU Università degli Studi della Campania "Luigi Vanvitelli" - Centro storico

Centre of Expertise for neuromuscular diseases Azienda Ospedaliera di Padova

Centre of Expertise for rare neuromuscular and neurodegenerative diseases Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

Centre of Expertise for rare pediatric neurologic diseases IRCCS Ospedale Pediatrico Bambino Gesù - SEDE SAN PAOLO

Centre of Expertise for amyotrophic lateral sclerosis and motor neuron diseases Ospedale Molinette

Centre of Expertise for neuromuscular diseases Ospedale Molinette

Centre for Neuromuscular Diseases Amsterdam UMC, locatie AMC

Neuromuscular Center LUMC - Leids Universitair Medisch Centrum

Neuromuscular Centre AZM - Academisch Ziekenhuis Maastricht

Neuromuscular Centre Radboudumc - Radboud universitair medisch centrum

Radboud Center for Mitochondrial Medicine Radboudumc - Radboud universitair medisch centrum

NeMo Centre - Expert Centre for Neuromuscular and Mitochondrial Diseases Erasmus MC - Erasmus Medisch Centrum

Neuromuscular Center Erasmus MC Erasmus MC - Erasmus Medisch Centrum

Pompe Center Erasmus MC - Erasmus Medisch Centrum

Brain Centre Rudolf Magnus Neuromuscular Diseases UMC Utrecht - Universitair Medisch Centrum Utrecht

Klinika Rzadkich Chorob Neurologicznych Samodzielny Publiczny Centralny Szpital Kliniczny w Warszawie

Dysmorphology clinic University Medical Center Ljubljana

CSUR - National unit of expertise for rare neuromuscular diseases (adults) Hospital Universitari Vall d'Hebron

CSUR - National unit of expertise for rare neuromuscular diseases (pediatric) Hospital Universitari Vall d'Hebron

CSUR - National unit of expertise for rare neuromuscular diseases Hospital de la Santa Creu i Sant Pau

CSUR - National unit of expertise for rare neuromuscular diseases Hospital Sant Joan de Déu Barcelona

CSUR - National unit of expertise for rare neuromuscular diseases Hospital Universitario Virgen del Rocío

CSUR - National unit of expertise for rare neuromuscular diseases Hospital Universitario y Politécnico La Fe

Expert team for neuromuscular diseases Sahlgrenska Universitetssjukhuset

Expert team for Arthrogryposis Multiplex Congenita - AMC Karolinska Universitetssjukhuset - Solna

Expert team for neuromuscular diseases Karolinska Universitetssjukhuset - Solna

Rare Neuromuscular Disorders (Congenital Muscular Dystrophies and Congenital Myopathies) NHS Specialised Service GOSH NHS Foundatin Trust

Rare Neuromuscular Disorders (Limb Girdle Muscular Dystrophies) NHS Specialised Service Dental Hospital

Rare Neuromuscular Disorders (Congenital Myasthenic Syndromes) NHS Specialised Service John Radcliffe Hospital

Więcej informacji o tej sieci

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Antwerp
University Hospital of Antwerp - UZA

NeuroMuscular Reference Center (NMRC) (adults section) - UZ Antwerpen
University Hospital of Antwerp - UZA

NeuroMuscular Reference Center (NMRC) (children section) - UZ Antwerpen
University Hospital of Antwerp - UZA

Multidisciplinary expert team/Centre for rare diseases Saint-Luc University Hospital
Cliniques universitaires Saint-Luc - UCLouvain

NeuroMuscular Reference Center (NMRC) - UCL Saint-Luc
Cliniques universitaires Saint-Luc - UCLouvain

Multidisciplinary expert team/Centre for rare diseases Erasme University Hospital
Erasme Hospital - ULB

NeuroMuscular Reference Center (NMRC) - ULB Erasme-HUDERF
Erasme Hospital - ULB

General Genetic Counselling Clinic - UZ Gent
Center for Medical Genetics Gent

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Ghent
Ghent University Hospital - UZ Gent

NeuroMuscular Reference Center (NMRC) (adults section) - UZ Gent
Ghent University Hospital - UZ Gent

NeuroMuscular Reference Center (NMRC) (children section) - UZ Gent
Ghent University Hospital - UZ Gent

Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

NeuroMuscular Reference Center (NMRC) (adults section) - UZ Leuven
UZ Leuven - Campus Gasthuisberg

NeuroMuscular Reference Center (NMRC) (children section) - UZ Leuven
UZ Leuven - Campus Gasthuisberg

Tampere Neuromuscular Center
TAYS - Tampere University Hospital

Reference centre for neuromuscular diseases Nord/Est/Ile-de-France - Constitutive site (children)
CHU Paris IdF Ouest - Hôpital Raymond Poincaré

Reference centre for familial amyloid neuropathy and other rare peripheral neuropathies - Coordinator site
CHU Paris-Sud - Hôpital de Bicêtre

Reference centre for amyotrophic lateral sclerosis and other rare diseases of the motor neuron - Coordinator site
CHU de Limoges - Hôpital Dupuytren

Reference centre for neuromuscular diseases PACA-Réunion-Rhône Alpes - Coordinator site (adult)
CHU de Marseille - Hôpital de la Timone

Reference centre for neuromuscular diseases Atlantique Occitanie Caraïbe - Constitutive site
CHU de Nantes - Hôtel Dieu

Reference centre for neuromuscular diseases PACA-Réunion-Rhône Alpes - Constitutive site
CHU de Nice - Hôpital Pasteur

Reference centre for neuromuscular diseases Nord/Est/Ile-de-France - Coordinator site
Institut de Myologie - Hôpital Pitié-Salpêtrière

Reference centre for neuromuscular diseases PACA-Réunion-Rhône Alpes - Constitutive site
CHU de Saint-Etienne - Hôpital Nord

Central nervous system malformations and microcephaly clinic
Charité - Universitätsmedizin Berlin (CVK)

Neural tube defect clinic
Charité - Universitätsmedizin Berlin (CVK)

Rare neurologic movement disorders, muscular diseases and epilepsy clinic
Universitätsklinikum Bonn (AöR)

Myasthenia clinic
Universitätsklinikum Essen

Neuromuscular diseases clinic
Universitätsklinikum Essen

Rare neurologic and neuromuscular diseases clinic
Universitätsklinikum Freiburg

Neuromuscular diseases clinic
Universitätsmedizin Göttingen

Neuromuscular diseases clinic
Friedrich-Baur-Institut

Neuromuscular diseases clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Amyotrophic lateral sclerosis clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

Motor neuron diseases clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

Outpatient Clinic of Rare Disorders
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

National Rare Disease Research Coordination Centre - Genetic counselling clinic
Clinical Center - University of Pécs

Centre of expertise for neuromuscular diseases
ASST Spedali Civili di Brescia

Centre of Expertise for neuromuscular diseases
A.O.U. Sant'Anna - Polo Chimico-Bio-Medico

Genetic counselling
A.O.U. Sant'Anna - Polo Chimico-Bio-Medico

Centre of Expertise for neuromuscular and neurodegenerative diseases
A.O.U. Policlinico "G. Martino"

Centre of Expertise for neuromuscular diseases
Centro Clinico Nemo

Centre of Expertise for neuromuscular diseases
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

Centre of Expertise for primary and amyotrophic lateral sclerosis
IRCCS Istituto Auxologico Italiano - Ospedale San Luca

Centre of Expertise for genetic skeletal muscle diseases
AOU Università degli Studi della Campania "Luigi Vanvitelli" - Centro storico

Centre of Expertise for neuromuscular diseases
Azienda Ospedaliera di Padova

Centre of Expertise for rare neuromuscular and neurodegenerative diseases
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

Centre of Expertise for rare pediatric neurologic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE SAN PAOLO

Centre of Expertise for amyotrophic lateral sclerosis and motor neuron diseases
Ospedale Molinette

Centre of Expertise for neuromuscular diseases
Ospedale Molinette

Centre for Neuromuscular Diseases
Amsterdam UMC, locatie AMC

Neuromuscular Center
LUMC - Leids Universitair Medisch Centrum

Neuromuscular Centre
AZM - Academisch Ziekenhuis Maastricht

Neuromuscular Centre
Radboudumc - Radboud universitair medisch centrum

Radboud Center for Mitochondrial Medicine
Radboudumc - Radboud universitair medisch centrum

NeMo Centre - Expert Centre for Neuromuscular and Mitochondrial Diseases
Erasmus MC - Erasmus Medisch Centrum

Neuromuscular Center Erasmus MC
Erasmus MC - Erasmus Medisch Centrum

Pompe Center
Erasmus MC - Erasmus Medisch Centrum

Brain Centre Rudolf Magnus Neuromuscular Diseases
UMC Utrecht - Universitair Medisch Centrum Utrecht

Klinika Rzadkich Chorob Neurologicznych
Samodzielny Publiczny Centralny Szpital Kliniczny w Warszawie

Dysmorphology clinic
University Medical Center Ljubljana

CSUR - National unit of expertise for rare neuromuscular diseases (adults)
Hospital Universitari Vall d'Hebron

CSUR - National unit of expertise for rare neuromuscular diseases (pediatric)
Hospital Universitari Vall d'Hebron

CSUR - National unit of expertise for rare neuromuscular diseases
Hospital de la Santa Creu i Sant Pau

CSUR - National unit of expertise for rare neuromuscular diseases
Hospital Sant Joan de Déu Barcelona

CSUR - National unit of expertise for rare neuromuscular diseases
Hospital Universitario Virgen del Rocío

CSUR - National unit of expertise for rare neuromuscular diseases
Hospital Universitario y Politécnico La Fe

Expert team for neuromuscular diseases
Sahlgrenska Universitetssjukhuset

Expert team for Arthrogryposis Multiplex Congenita - AMC
Karolinska Universitetssjukhuset - Solna

Expert team for neuromuscular diseases
Karolinska Universitetssjukhuset - Solna

Rare Neuromuscular Disorders (Congenital Muscular Dystrophies and Congenital Myopathies) NHS Specialised Service
GOSH NHS Foundatin Trust

Rare Neuromuscular Disorders (Limb Girdle Muscular Dystrophies) NHS Specialised Service
Dental Hospital

Rare Neuromuscular Disorders (Congenital Myasthenic Syndromes) NHS Specialised Service
John Radcliffe Hospital