Orphanet: Ricerca per nome della malattia
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SVIZZERA

Suisse Alémanique
BERN

kosek - National Coordination of Rare Diseases
c/o unimedsuisse, Haus der Akademien

UNGHERIA

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NORVEGIA

Østlandet
OSLO

NKSD - National Advisory Unit on Rare Disorders, Norway
Oslo University Hospital, Ullevaal

SPAGNA

Cataluña
ESPLUGUES DE LLOBREGAT

XUEC-Metabolic diseases
Hospital Sant Joan de Déu Barcelona

FRANCIA

ILE-DE-FRANCE
COLOMBES

EPNET: European network on centre of reference on porphyria (centres of expertise)
CHU Paris Nord-Val de Seine - Hôpital Louis Mourier

FRANCIA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANIA

Bayern
MÜNCHEN

GERMANIA

Nordrhein-Westfalen
BAD LIPPSPRINGE

REGNO UNITO; GRAN BRETAGNA

Greater Manchester
SALFORD

BIPNET: British & Irish Porphyria network
Salford Royal NHS Foundation Trust

FRANCIA

ILE-DE-FRANCE
PARIS

Cardiogen - French rare diseases Healthcare Network : hereditary heart diseases
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

FRANCIA

ILE-DE-FRANCE
PARIS

FRANCIA

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

IRLANDA

County Dublin
DUBLIN

Irish Traveller Network
Children's Health Ireland @ Crumlin