Orphanet: Ricerca per nome della malattia
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FRANCIA

ILE-DE-FRANCE
PARIS

MaRIH - French rare diseases Healthcare Network : rare immuno-hematologic diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCIA

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

GERMANIA

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

IRLANDA

County Dublin
DUBLIN

Irish Traveller Network
Our Lady's Children's Hospital

SVIZZERA

Suisse Alémanique
BERN

kosek - National Coordination of Rare Diseases
c/o unimedsuisse, Haus der Akademien

UNGHERIA

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University