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Funded by an IRDiRC member =

Expert centre networks

AUSTRIA

SALZBURG
SALZBURG

EB-CLINET
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NORWAY

Østlandet
OSLO

Multicentric Research projects

NETHERLANDS

Groningen
GRONINGEN

Funded by an IRDiRC memberSpliceEB: Splicing therapies for Dystrophic Epidermolysis Bullosa
UMCG - Universitair Medisch Centrum Groningen

GERMANY

Baden-Württemberg
FREIBURG

EB-Net: Network Epidermolysis bullosa
Universitäts-Klinik für Dermatologie und Venerologie

GERMANY

Baden-Württemberg
FREIBURG

Funded by an IRDiRC memberEBThera: Repurposing biomolecules for the treatment of epidermolysis bullosa
Universitäts-Klinik für Dermatologie und Venerologie

ITALY

LAZIO
ROMA

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
Hôpital Necker-Enfants Malades

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

Multinational clinical trials

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

AUSTRIA

WIEN
WIEN

DEBRA International
DEBRA Austria

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

NAMUR
WÉPION