Búsqueda de una enfermedad rara
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21 Resultado(s)
- 6 Redes de centros expertos
- 10 Redes de proyectos de investigación
- 1 Ensayos clínicos multinacionales
- 2 Redes de registros de pacientes
- 1 Redes de biobancos
- 1 Redes de asociaciones de pacientes
Financiado por un miembro del IRDiRC = 
Redes de centros expertos
ALEMANIA
Baden-Württemberg
TÜBINGEN
ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen
FRANCIA
PROVENCE-ALPES-COTE D'AZUR
NICE
FILSLAN - French rare diseases Healthcare Network : Amyotrophic lateral sclerosis and rare motor neuron diseases
CHU de Nice - Hôpital Pasteur
HUNGRIA
Közép-Magyarország
BUDAPEST
Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University
FRANCIA
PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Filnemus - French rare diseases Healthcare Network : neuromuscular diseases
CHU de Marseille - Hôpital de la Timone
REINO UNIDO (EL)
Greater London
LONDON
North Start Clinical Network for paediatric neuromuscular disease
GOSH NHS Foundatin Trust
REINO UNIDO (EL)
Tyne & Wear
NEWCASTLE UPON TYNE
EURO-NMD: European Reference Network for Rare Neuromuscular Diseases
Newcastle upon Tyne Hospitals NHS Trust
Redes de proyectos de investigación
ALEMANIA
Berlin
BERLIN
ENIVD: European Network for Diagnostics of 'Imported' Viral Diseases
Robert Koch-Institut
ALEMANIA
Baden-Württemberg
ULM
MND-Net: German Network for motoneuron diseases
Universitäts- und Rehabilitationskliniken Ulm (RKU)
ALEMANIA
Bayern
MÜNCHEN
BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)
ESPAÑA
Cataluña
L'HOSPITALET DE LLOBREGAT
CIEN: Fundación Centro de Investigación de Enfermedades Neurológicas
Hospital Universitari de Bellvitge
ALEMANIA
Berlin
BERLIN
EUROMUSCLENET: European information network on muscle diseases
Charité / Max-Delbrück-Centrum für Molekulare Medizin
FRANCIA
AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR
NMD-CHIP: Development of targeted DNA-Chips for High Throughput Diagnosis of NeuroMuscular Disorders
Institution: Information not provided - FR
FRANCIA
AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand
FRANCIA
PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
NMD-CHIP: development of targeted DNA-chips for high throughput diagnosis of neuromuscular disorders
CHU de Marseille - Hôpital de la Timone
REINO UNIDO (EL)
Tyne & Wear
NEWCASTLE UPON TYNE
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (research)
Newcastle upon Tyne Hospitals NHS Trust
Ensayos clínicos multinacionales
FRANCIA
ILE-DE-FRANCE
PARIS
Nemucough : Evaluation of a Mechanical Insufflation-Exsufflation Device During Acute Respiratory Failure in Patients With Neuromuscular Disorders: a Prospective, Randomized, Controlled, Multicenter Study (Phase III) (coordination)
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
Redes de registros de pacientes
ESPAÑA
Cataluña
BARCELONA
NMD-ES: Registro Español de enfermedades neuromusculares
Hospital de la Santa Creu i Sant Pau
REINO UNIDO (EL)
Tyne & Wear
NEWCASTLE UPON TYNE
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (registries)
Newcastle upon Tyne Hospitals NHS Trust
Redes de biobancos
ALEMANIA
Bayern
MÜNCHEN