x

Cerca una malattia rara

* (*) campo obbligatorio

Altra/e opzione/i di ricerca

65 Risultato/i

Ordinato per

Finanziato da un ente associato a IRDiRC =

Network di centri specializzati

FRANCIA

ILE-DE-FRANCE
PARIS

MaRIH - French rare diseases Healthcare Network : rare immuno-hematologic diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCIA

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

GERMANIA

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

UNGHERIA

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

IRLANDA

County Dublin
DUBLIN

Irish Traveller Network
Our Lady's Children's Hospital

Network di progetti di ricerca

SPAGNA

Madrid
ADDRESS: NOT PROVIDED - ES

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
SAINT-JOSSE-TEN-NOODE

FRANCIA

AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR

GEAI : study group on auto-immunity
Institution: Information not provided - FR

FRANCIA

HAUTS-DE-FRANCE
LENS

GEM: study group on myelofibrosis
Centre hospitalier de Lens

FRANCIA

ILE-DE-FRANCE
PARIS

FRANCIA

ILE-DE-FRANCE
PARIS

FIM: French Intergroup of Myeloproliferative syndromes
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCIA

ILE-DE-FRANCE
PARIS

Clinical research network on sickle cell anemia
Groupe hospitalier AP-HP.6 - Hôpital Tenon

FRANCIA

ILE-DE-FRANCE
PARIS

GERMANIA

Baden-Württemberg
TÜBINGEN

BMFS: Network for Congenital Bone Marrow Failure Syndromes
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

ITALIA

LOMBARDIA
PAVIA

EUMNET: European Myelofibrosis Network
Fondazione IRCCS Policlinico San Matteo

ITALIA

PUGLIA
BARI

Finanziato da un ente associato a IRDiRCDEEP: DEferiprone Evaluation in Paediatrics
Università degli Studi di Bari Aldo Moro

PAESI BASSI

Noord-Holland
AMSTERDAM

REGNO UNITO; GRAN BRETAGNA

West Midlands
BIRMINGHAM

Midlands Muscle Network
Birmingham Children's Hospital NHS Foundation Trust

SPAGNA

Cataluña
BELLATERRA

Spanish Fanconi Anemia research network
Universitat Autònoma de Barcelona

AUSTRIA

TIROL
INNSBRUCK

HUS Study Group
Medizinische Universität Innsbruck

FRANCIA

GRAND-EST
ILLKIRCH-GRAFFENSTADEN

Réseau d'étude des retards mentaux et déficits cognitifs monogéniques
Institut de génétique et de biologie moléculaire et cellulaire - IGBMC

FRANCIA

ILE-DE-FRANCE
PARIS

Groupe d'étude de microangiopathies thrombotiques
CHU Paris Est - Hôpital Saint-Antoine

REGNO UNITO; GRAN BRETAGNA

West Midlands
BIRMINGHAM

European Paediatric Research for Hemolytic Uremic Syndrome (HUS)
Birmingham Children's Hospital NHS Foundation Trust

Sperimentazioni cliniche internazionali

Network di registri di pazienti

GERMANIA

Baden-Württemberg
HEIDELBERG

Network di associazioni di pazienti

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

CANADA

Québec
MONTREAL

Network of Rare Blood Disorder Organizations
Network of Rare Blood Disorder Organizations

CIPRO

Cyprus
NICOSIA

TIF - Thalassaemia International Federation Network
Thalassaemia International Federation

REGNO UNITO; GRAN BRETAGNA

Cheshire
KNUTSFORD