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11 Result(s)
Funded by an IRDiRC member = Member of a ERN =
Registries and Biobanks

ITALY
LAZIO
ROMA
International registry of recurrent and familial hemolytic uremic syndrome/thrombotic thrombocytopenic purpura
Fondazione Telethon

ITALY
LAZIO
ROMA
RAM-NET: Italian registry of patients with neuromuscular diseases - contributes to Treat-NMD european network
Fondazione Telethon

ITALY
LAZIO
ROMA
Telethon-UILDM registry CMD (Congenital Muscular Dystrophy) - contributes to european Treat-NMD network
Fondazione Telethon

ITALY
LAZIO
ROMA
Telethon-UILDM registry FSHD (Facioscapulohumeral dystrophy) - contributes to european Treat-NMD network
Fondazione Telethon

ITALY
LAZIO
ROMA
Telethon-UILDM registry LGMD (Limb Girdle Muscular Dystrophy) - contributes to european Treat-NMD network
Fondazione Telethon
Networks of registries and biobanks

ITALY
LIGURIA
GENOVA