Cerca un registro/una biobanca
Altra/e opzione/i di ricerca
32 Risultato/i
Finanziato da un ente associato a IRDiRC = 
Membro di una ERN = 
Registri and biobanche
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERCUSYN: European registry on Cushing's syndrome
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
European Porphyria Registry (EPR)
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EIMD: Registro e network europeo per malattia metabolica da intossicazione
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Registro per le sindromi di Wolfram, Alström , Bardet-Biedl e altre sindromi rare - afferisce al network EURO-WABB
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROMAC: Registry of patients affected by McArdle Disease
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURO-WABB: An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome, Bardet-Biedl Syndrome and Other Rare Diabetes Syndromes - UK
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURO-WABB: An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome, Bardet-Biedl Syndrome and Other Rare Diabetes Syndromes - ES
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Irish Registry for homocystinurias and methylation defects - contributes to E-HOD
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [MetabERN] - UIMD: Unified European Registry for Inherited Metabolic DisordersUIMD: Unified European Registry for Inherited Metabolic Disorders
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
E-HOD - European network and registry for homocystinurias and methylation defects (contributes to U-IMD)
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [PAEDCAN] - PARTNER: Paediatric Rare Tumours Networks - European Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [Endo-ERN] - EuRRECa: European Registries for Rare Endocrine Conditions
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [ReCONNET] - TogethERN ReCONNET: un Registro Europeo per l'armonizzazione dei dati sulle malattie rare del tessuto connettivo e dell'apparato muscolo-scheletrico
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [EURACAN] - STARTER: STarting an Adult Rare Tumor European Registry (avvio di un Registro Europeo dei tumori rari negli adulti)
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [RITA] - MERITA: UN REGISTRO DI METADATI PER ERN RITA
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
ERN [Endo-ERN] - EuRRECa: European Registries for Rare Endocrine Conditions - Belgian contribution (Ghent university hospital)
European Commission
DG SANTE - Directorate General for Health and Food Safety
Network di registri and biobanche
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROCAT: European surveillance of congenital anomalies
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EUROFEVER: PReS network europeo di registri sulle sindromi autoinfiammatorie in età pediatrica
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
SCNIR: Severe Chronic Neutropenia International Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
E-IMD : European registry and network for Intoxication type Metabolic Diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
EURO-WABB: An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes
European Commission
DG SANTE - Directorate General for Health and Food Safety
BELGIO
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
E-HOD - European network and registry for homocystinurias and methylation defects
European Commission
DG SANTE - Directorate General for Health and Food Safety
GERMANIA
Baden-Württemberg
HEIDELBERG
E-IMD : European registry and network for Intoxication type Metabolic Diseases
Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik
Klinik für Kinderheilkunde I - Sektion für Neuropädiatrie und Stoffwechselmedizin
GERMANIA
Niedersachsen
HANNOVER
SCNIR: Severe Chronic Neutropenia International Registry
Medizinische Hochschule Hannover
SCNIR - Europazentrale
ITALIA
LIGURIA
GENOVA
EUROFEVER: PReS network europeo di registri sulle sindromi autoinfiammatorie in età pediatrica
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie
PAESI BASSI
Noord-Holland
AMSTERDAM
E-HOD - European network and registry for homocystinurias and methylation defects
Amsterdam UMC, locatie VUmc
Afdeling Interne Geneeskunde
PAESI BASSI
Zuid-Holland
LEIDEN
PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
LUMC - Leids Universitair Medisch Centrum
Afdeling Longziekten
REGNO UNITO; GRAN BRETAGNA
Antrim and Newtownabbey
NEWTOWNABBEY
EUROCAT: European surveillance of congenital anomalies
University of Ulster
Room 12 L09
REGNO UNITO; GRAN BRETAGNA
West Midlands
BIRMINGHAM