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Cerca un registro/una biobanca

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Finanziato da un ente associato a IRDiRC =

Registri and biobanche

GERMANIA

Schleswig-Holstein
KIEL

German amyloid registry kiel
Universitätsklinikum Schleswig-Holstein - Campus Kiel
Institut für Pathologie des UKSH und der CAU zu Kiel

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Central Registry of Rare Diseases (CRRD)
Sciensano
Health Services Research - Rare Diseases

FRANCIA

ILE-DE-FRANCE
PARIS

French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)

GERMANIA

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

ITALIA

SICILIA
MESSINA

Finanziato da un ente associato a IRDiRCRegistro Nazionale per l'Amiloidosi Familiare da Transtiretina (TTR-FAP)
A.O.U. Policlinico "G. Martino"
Centro Clinico Nemo Sud - Centro ad alta specializzazione per le malattie neuromuscolari

SVEZIA

Västerbottens läns landsting
UMEÅ

Swedish Registry for Familial Amyloid Polyneuropathy
University Hospital of Umeå
Department of Medicine