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Finanziato da un ente associato a IRDiRC =

Registri and biobanche

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Central Registry of Rare Diseases (CRRD)
Sciensano
Health Services Research - Rare Diseases

FRANCIA

AUVERGNE-RHONE-ALPES
GRENOBLE

Cloud-R HAE Register Hereditary Angiodema
CHU de Grenoble site Nord - Hôpital Albert Michallon
Centre national de référence des angioedčmes (CREAK)

FRANCIA

ILE-DE-FRANCE
PARIS

French National Registry for Rare Diseases (BNDMR)
AP-HP Campus Picpus - Département WIND (Web Innovation Données)
Banque Nationale de Données Maladies Rares (BNDMR)

GERMANIA

Berlin
BERLIN

Core documentation of children and adolescens with rheumatic diseases
Deutsches Rheuma-Forschungszentrum Berlin
Forschungsbereich Epidemiologie

ITALIA

LOMBARDIA
MILANO

HAE: Registro europeo di pazienti affetti da angioedema ereditario
Azienda Ospedaliera "Luigi Sacco"
Centro Studi Angioedema

ITALIA

LOMBARDIA
MILANO

Registro italiano dell'Angioedema Ereditario
Azienda Ospedaliera "Luigi Sacco"
Centro Studi Angioedema

REGNO UNITO; GRAN BRETAGNA

Greater London
LONDON

English hereditary angioedema patient registry - part of the HAE European registry
Barts and the London NHS Trust
Department of Immunology

STATI UNITI

Massachusetts
CAMBRIDGE

IOS : Icatibant Outcome Survey for hereditory angioedema
Shire Human Genetics Therapies, Inc.

SVEZIA

Skane
LUND

SERPING1base: Mutation registry for Hereditary angioedema
Lund University
Department of Experimental Medical Science

UNGHERIA

Közép-Magyarország
BUDAPEST

Hungarian Angioedema Register
Semmelweis Egyetem, Kútvölgyi Klinikai tömb
Semmelweis Egyetem III. Sz. Belgyógyászati Klinika Kutatólaboratóriuma

FRANCIA

AUVERGNE-RHONE-ALPES
GRENOBLE

Cobra: COhort Angioedema Berinert
CHU de Grenoble site Nord - Hôpital Albert Michallon
Centre national de référence des angioedčmes (CREAK)

ITALIA

LOMBARDIA
MILANO

Registro Mondiale dell'Angioedema Ereditario tipo I e II
Azienda Ospedaliera "Luigi Sacco"
Centro Studi Angioedema

UNGHERIA

Közép-Magyarország
BUDAPEST

HAEdb: C1 inhibitor gene mutation database
Institute of Haematology and Immunology