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45 Resultado(s)

Financiado por um membro do IRDiRC = Membro de uma ERN =

Registos e biobancos

BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

ERCUSYN: European registry on Cushing's syndrome
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

European Porphyria Registry (EPR)
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes - contributing to EURO-WABB
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCEIMD: European registry and network for intoxication type metabolic diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCEUROMAC: Registry of patients affected by McArdle Disease
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCEURO-WABB: An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome, Bardet-Biedl Syndrome and Other Rare Diabetes Syndromes - UK
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

EURO-WABB: An EU Rare Diseases Registry for Wolfram Syndrome, Alstrom Syndrome, Bardet-Biedl Syndrome and Other Rare Diabetes Syndromes - ES
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCIrish Registry for homocystinurias and methylation defects - contributes to E-HOD
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [ERKNet] - ERKReg: The European Rare Kidney Disease Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [MetabERN] - UIMD: Unified European Registry for Inherited Metabolic DisordersUIMD: Unified European Registry for Inherited Metabolic Disorders
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

E-HOD - European network and registry for homocystinurias and methylation defects (contributes to U-IMD)
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [PAEDCAN] - PARTNER: Paediatric Rare Tumours Networks - European Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [Endo-ERN] - EuRRECa: European Registries for Rare Endocrine Conditions
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
ERN
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [EpiCARE] - EPICARE-GRANT: An Operational EPICARE Registry for all Rare and Complex Epilepsies
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [GUARD-Heart] - The Heart-Core Registry: a Gateway to Uncommon and Rare Diseases of the Heart
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [BOND] - EuRR-Bone: European Registry for Rare Bone and Mineral Conditions
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [CRANIO] - ERN CRANIO registry
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [ERNICA] - ERNICA-registry for improving care
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [GENTURIS] - GENTURIS registry: The ERN Genetic Tumour Risk Syndromes Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [eUROGEN] - ERN eUROGEN Registry for rare urogenital diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [ReCONNET] - TogethERN ReCONNET: a European Registry Infrastructure for data harmonization in rare and complex connective tissue and musculoskeletal diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [EURACAN] - STARTER: STarting an Adult Rare Tumor European Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [RITA] - MERITA: A METADATA REGISTRY FOR THE ERN RITA
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [ITHACA] - ILIAD Rare Diseases patient registry: an International Library of Intellectual disability and Anomalies of Development
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [EYE] - REDgistry: An interoperable sustainable European Rare Eye Disease Registry
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [VASCERN] - VASCERN Registries
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [Skin] - ERN-Skin REGISTRY: Interoperable ERN on Rare and Undiagnosed Skin Disorders
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [EURO-NMD] - EURO-NMD Registry: Patient centered and interoperable registry hub for Rare Neuromuscular Diseases
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Financiado por um membro do IRDiRCERN [Endo-ERN] - EuRRECa: European Registries for Rare Endocrine Conditions - Belgian contribution (Ghent university hospital)
European Commission
DG SANTE - Directorate General for Health and Food Safety

Mais detalhes
ERN

Redes de registos e biobancos

ALEMANHA

Baden-Württemberg
HEIDELBERG

Financiado por um membro do IRDiRCE-IMD : European registry and network for Intoxication type Metabolic Diseases
  • Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik
  • Klinik für Kinderheilkunde I - Sektion für Neuropädiatrie und Stoffwechselmedizin

    • Mais detalhes
    ALEMANHA

    Niedersachsen
    HANNOVER

    SCNIR: Severe Chronic Neutropenia International Registry
  • Medizinische Hochschule Hannover
  • SCNIR - Europazentrale

    • Mais detalhes
    BELGICA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Financiado por um membro do IRDiRCEUROCAT: European surveillance of congenital anomalies
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety

    • Mais detalhes
    BELGICA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety

    • Mais detalhes
    BELGICA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    EUROFEVER: PReS European network of registries for autoinflammatoy diseases in childhood
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety

    • Mais detalhes
    BELGICA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    SCNIR: Severe Chronic Neutropenia International Registry
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety

    • Mais detalhes
    BELGICA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Financiado por um membro do IRDiRCE-IMD : European registry and network for Intoxication type Metabolic Diseases
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety

    • Mais detalhes
    BELGICA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Financiado por um membro do IRDiRCEURO-WABB: An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety

    • Mais detalhes
    BELGICA

    ARRONDISSEMENT BRUSSELS-CAPITAL
    BRUSSELS

    Financiado por um membro do IRDiRCE-HOD - European network and registry for homocystinurias and methylation defects
  • European Commission
  • DG SANTE - Directorate General for Health and Food Safety

    • Mais detalhes
    ITALIA

    LIGURIA
    GENOVA

    EUROFEVER: PReS European network of registries for autoinflammatoy diseases in childhood
  • IRCCS Istituto G. Gaslini - Ospedale Pediatrico
  • U.O.C. di Pediatria II - I.A.S. Malattie Autoinfiammatorie

    • Mais detalhes
    PAISES BAIXOS

    Noord-Holland
    AMSTERDAM

    Financiado por um membro do IRDiRCE-HOD - European network and registry for homocystinurias and methylation defects
  • Amsterdam UMC, locatie VUmc
  • Afdeling Interne Geneeskunde

    • Mais detalhes
    PAISES BAIXOS

    Zuid-Holland
    LEIDEN

    PAAIR: Patient's Association and Alpha-1 International Registry network (FINALISED)
  • LUMC - Leids Universitair Medisch Centrum
  • Afdeling Longziekten

    • Mais detalhes
    REINO UNIDO

    Antrim and Newtownabbey
    NEWTOWNABBEY

    Financiado por um membro do IRDiRCEUROCAT: European surveillance of congenital anomalies
  • University of Ulster
  • Room 12 L09

    • Mais detalhes
    REINO UNIDO

    West Midlands
    BIRMINGHAM

    Financiado por um membro do IRDiRCEURO-WABB: An EU Rare Diseases Registry for Wolfram syndrome, Alström syndrome, Bardet-Biedl syndrome and other rare diabetes syndromes
  • Birmingham Children's Hospital NHS Foundation Trust
  • Diabetes Unit

    • Mais detalhes