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Patient organisations

ITALY

LOMBARDIA-MILANO

AAEE - Onlus Associazione Volontaria per l'angioedema ereditario ed altre forme rare di angioedema

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UNITED KINGDOM

Somerset-BRIDGWATER

HAE UK- Hereditary Angioedema UK

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AUSTRIA

OBERÖSTERREICH-NIEDERWALDKIRCHEN

HAE Austria - Österreichische Selbsthilfegruppe für das Hereditäre Angioödem

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BULGARIA

 South Central region-PLOVDIV

ASSOCIATION OF HEREDITARY ANGIOEDEMA PATIENTS

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CANADA

Ontario-OTTAWA

Hereditary Angioedema Canada - Angioédème Héréditaire Canada

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CROATIA

CROATIA-KANFANAR

HAEI - International Patient Organization for C1-Inhibitor Deficiencies ( Croatian contact point)

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GERMANY

Nordrhein-Westfalen-ALDENHOVEN/SIERSDORF

HAE-Vereinigung e.V.

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HUNGARY

Közép-Dunántúl-SZEKESFEHERVAR

Magyarorszagi Angio-Odemas Betegek Egyesulete

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ISRAEL

ISRAEL-PETAH TIKVA

EDEMA - HAE patient organization Israel

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NETHERLANDS

Utrecht-HOUTEN

Vereniging voor Angio Oedeem

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NORWAY

Østlandet-OSLO

HAE Scandinavia - Norge

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POLAND

Kraków-KRAKOW

Polskie Stowarzyszenie Pomocy Chorym Z Obrzekiem Naczynioruchowym PIEKNIE PUCHNE

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SPAIN

Madrid-TORRELODONES

AEDAF: Asociación Española de Angioedema Familiar por Deficiencia del Inhibidor C1

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SWITZERLAND

Suisse Alémanique-DÄNIKEN

Schweizer HAE-Vereinigung Hereditäres Angioodem Patientenvereinigung / Association AOH Suisse Angio-oedème héréditaire Association de patients

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

Angioedema Belgium A.S.B.L./V.Z.W.

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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BELGIUM

NAMUR-WÉPION

Rare Disorders Belgium (RDB) ASBL - BE

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CZECH REPUBLIC

South Moravia-BRNO

Obcanské sdruzeni Imunodeficitnich pacientu HAE/AAE

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DENMARK

Syddanmark-HASSELAGER

Patientforeningen HAE Danmark

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FRANCE

ILE-DE-FRANCE-ORSAY

AMSAO - Association des Malades Souffrant d'Angio-oedèmes

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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IRELAND

County Dublin-DUBLIN

Rare Ireland-Family Support Network

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ITALY

LOMBARDIA-VARESE

La Gemma Rara ODV

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ERN

POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SPAIN

Andalucía-ALMERÍA

FPF: Fundación Poco Frecuente

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SPAIN

Castilla - León-TROBAJO DEL CAMINO

ADERLE: Asociación de Enfermedades Raras de León

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SPAIN

Galicia-A CORUÑA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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SWEDEN

Region Stockholm-BROTTBY

Willefonden

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera Italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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CYPRUS

Cyprus-NICOSIA

Cyprus League Against Rheumatism

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ITALY

LAZIO-ROMA

Anmar Italia Onlus - Associazione Nazionale Malati Reumatici

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ITALY

VENETO-VENEZIA

AIFP - Associazione Italiana Febbri Periodiche

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Alliances and umbrella organisations

DENMARK

Jylland

HORSENS

HAEi - International Patient Organization for C1 inhibitor Deficiencies

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER: Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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