Orphanet: Search for a patient organisation

AUSTRALIA

Victoria-MT WAVERLEY

TA - Thalassaemia Australia Inc.

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BELGIUM

BRABANT WALLON-VILLERS-LA-VILLE

ABT- Association Belge de Thalassémie A.S.B.L.

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BULGARIA

South-West region-SOFIA

Bulgarian anti-thalassaemia organisation

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BULGARIA

South-West region-SOFIA

Organisation of thalassaemia patients In Bulgaria

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CANADA

Ontario-TORONTO

Thalassemia Foundation of Canada

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GERMANY

Nordrhein-Westfalen-KERPEN

IST - Interessengemeinschaft Sichelzellkrankheit und Thalassämie e.V.

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GREECE

ATTIKI-ATHENS

G.T.F - Greek Thalassemia Federation

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ITALY

CAMPANIA-CASTELVOLTURNO

Fondazione ''Leonardo Giambrone'' per la Guarigione dalla Thalassemia

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ITALY

EMILIA ROMAGNA-FERRARA

Associazione per la Lotta alla Talassemia "Rino Vullo"

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ITALY

EMILIA ROMAGNA-RAVENNA

Associazione Emofilici e Talassemici ''Vincenzo Russo Serdoz''

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ITALY

LIGURIA-GENOVA

A.L.T. Onlus - Associazione Ligure Thalassemici

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ITALY

PIEMONTE-TORINO

AMAMI odv - Associazione Malati Anemia Mediterranea Italiana

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ITALY

SICILIA-PALERMO

Associazione per la Ricerca ''Piera Cutino'' - ONLUS

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ITALY

VENETO-ROVIGO

AVLT - Associazione Veneta per la Lotta alla Talassemia

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NETHERLANDS

Gelderland-TIEL

OSCAR Nederland

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ROMANIA

ARGES-CURTEA DE ARGES

HAND-ROM - The Humanitarian Foundation Orientation and Integration Social HAND-ROM

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UNITED KINGDOM

Greater London-LONDON

UKTS - United Kingdom Thalassaemia Society

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GERMANY

Baden-Württemberg-WAIBLINGEN

Thalassämiehilfe ohne Grenzen e.V.

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FRANCE

ILE-DE-FRANCE-CRÉTEIL

FMDT SOS Globi - Fédération des Malades Drépanocytaires et Thalassémiques

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IRELAND

County Dublin-DUBLIN

Sickle Cell and Thalassemia Ireland

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ITALY

SICILIA-CALTANISSETTA

ABE - Associazione Bambino Emopatico Caltanissetta

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LUXEMBOURG

LUXEMBOURG-STRASSEN

ECMH - Association étudier et combattre les maladies de l'hémoglobine

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MOROCCO

Rabat-RABAT

MATHED - Maroccan Association of Thalassemia and Hemoglobin Diseases

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PORTUGAL

SUL-ALMADA

APPDH-Associação Portuguesa de Pais e Doentes com Hemoglobinopatias

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SPAIN

Extremadura-BADAJOZ

ALHETA - Asociación española de lucha contra las hemoglobinopatias y talasemias

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UNITED KINGDOM

Greater London-BARKING

The Sickle Cell and Thalassaemia support group of Barking, Dagenham and Havering

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UNITED KINGDOM

Greater London-LONDON

Brent Sickle Cell Support Group

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUSSELS

RaDiOrg - Rare Diseases Belgium - BE

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL-BRUXELLES (NEDER-OVER-HEEMBEEK)

Rarity United A.S.B.L. - Organisation pour les parents d'enfants atteints d'une maladie rare ou non diagnostiquée

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SPAIN

Galicia-EIRÍS DE ARRIBA

FEGEREC - Federación Gallega de Enfermedades Raras e Crónicas

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SPAIN

Murcia-TOTANA

D'GENES Asociación de Enfermedades Raras y Trastornos Generalizados del Desarrollo de Totana

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SPAIN

Navarra-PAMPLONA

GERNA - Grupo de enfermedades raras de Navarra

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AUSTRALIA

New South Wales-DARLINGHURST

Genetic Alliance Australia (formerly Association of Genetic Support Australasia)

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AUSTRALIA

New South Wales-GLADESVILLE

AWCH - Association for the Wellbeing of Children in Healthcare

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AUSTRALIA

New South Wales-ST LEONARDS

Variety - the Children's Charity

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GREECE

ATTIKI-ATHENS

TO MELLON - Association of people with genetic disorders

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POLAND

Poznan-ROKIETNICA

GEN - Stowarzyszenie na Rzecz Dzieci z Zaburzeniami Genetycznymi

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ROMANIA

SALAJ-ZALAU

Centrul de Informare pentru Boli Genetice Rare - Centre for Information about Rare Genetic Disorders

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SWITZERLAND

Suisse Alémanique-USTER

KMSK - Kinder mit seltenen Krankenheiten - Gemeinnütziger Förderverein

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SWITZERLAND

Suisse Italienne-BELLINZONA

MGR - Associazione Malattie Genetiche Rare Svizzera italiana

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SWITZERLAND

Suisse Romande-MONTHEY

AEMO - Association Enfance et Maladies Orphelines

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SWITZERLAND

Suisse Romande-SION

MaRaVal - maladies rares valais - seltene krankheiten wallis

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SWITZERLAND

Suisse Romande-VUARRENS

UniRares - Association suisse de patients isolés, antenne romande

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UNITED KINGDOM

Antrim and Newtownabbey-BELFAST

URDDAD Foundation - The Ultra Rare Disease, Disorders & Disabilities Foundation

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UNITED KINGDOM

Greater London-LONDON

ARC - Antenatal Results and Choices

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UNITED KINGDOM

Surrey-OXTED

Unique - The Rare Chromosome Disorder Support Group

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UNITED KINGDOM

West Sussex-HAYWARDS HEATH

GDUK- Genetic Disorders UK

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CYPRUS

Cyprus

NICOSIA

TIF - Thalassaemia International Federation Network

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BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL

BRUSSELS

RaDiOrg - Rare Diseases Belgium

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BELGIUM

NAMUR

WÉPION

Rare Disorders Belgium (RDB) ASBL

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CANADA

Québec

MONTREAL

Network of Rare Blood Disorder Organizations

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SPAIN

Cataluña

BARCELONA

FECAMM - Federació Catalana de Malalties Minoritaries

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SPAIN

Madrid

MADRID

FEDER - Federación Española de Enfermedades Raras

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SWITZERLAND

Suisse Romande

VUARRENS

ProRaris - Alliance Maladies Rares-Suisse; Allianz Seltener Krankheiten-Schweiz; Alleanza Malattie Rare-Svizzera

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